Stories

Read stories from our members.


Natasha Rogers

I was born on the 17th November 1974, I was slow to feed & a bit blue colour skin. So I was put into the  ‘special care baby unit’ at my local hospital (Northampton) for a week then referred to Oxford (Radcliffe Infirmary) for further tests. Before …

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Andrew Whitby

  I was born in 1964 and soon after diagnosed with Transposition of the Great Arteries, I was referred to Great Ormond Street Hospital under Dr Bonham-Carter, and then to University College hospital under Dr Hollman and the Dr Radley-Smith, who re …

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James Doherty

I am 28 and received a double lung transplant in September 2013. I was born with the hereditary  condition Cystic Fibrosis. Cystic Fibrosis is a condition that mainly affects the lungs and digestive system. I managed to complete university  with increa …

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Lisa Innes

I received a heart & lung transplant 23 years ago, due to suffering from Cystic Fibrosis. It all began when I was just 18 months old I was diagnosed with CF. My parents  knew I had Cystic Fibrosis because my older sister Caroline who was seven year …

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Clair Hemmington

I was diagnosed with LAM (lymphangioleiomyomatosis – a lung disease which causes muscle cells that line the lungs’ airways and blood vessels to multiply abnormally) six months after I got married in 2004, I was 39 and I had a lovely 18-month-old daught …

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Douglas Forbes

I had double-lung transplant surgery in August 2013, at the age of 31, due to Cystic Fibrosis. My CF lungs had got me as far as they could, so I was placed on the transplant list and was fortunate enough to only wait for 3 months until surgery, with on …

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Janka Penther

I am 34yrs old and received a double lung transplant in April 2013. I was born with Cystic Fibrosis and fortunately I had been quite well for most of my life. Despite never being very good at it I loved sports, joined the local basketball and jiu-jitsu …

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